Eddie Vedder's New Documentary Spotlighting a Rare Disease to Premiere on Netflix

And now, Netflix has picked up Matter of Time, the title of Eddie Vedder 's new project that spotlights Epidermolysis Bullosa ...

Eddie Vedder's 'Matter of Time' documentary lands at Netflix, sets premiere date

EXCLUSIVE: Eddie Vedder, lead singer of veteran rockers Pearl Jam, has been helping to fund a cure for Epidermolysis Bullosa ...
WRAL

Eddie Vedder’s quest to help cure a rare disease subject of new documentary

(CNN) — “Matter of Time,” a documentary featuring Pearl Jam frontman Eddie Vedder that is set to debut this summer at the Tribeca Film Festival, is being billed as much more than a concert film – it’s ...
Frontiers

Molecular Mechanisms and Precision Medicine in Rare Diseases

Rare diseases are genetic disorders that affect a small proportion of the population. Despite their rarity, they can be a ...
STAT

Parents of children with rare diseases ask: How long until our CRISPR miracle?

Lozano is a rare disease mom, neuroscience Ph.D. candidate at UC Davis, and board member for the PURA Syndrome Foundation. In May, a historic moment in science and medicine was captured in a single ...
Sentinel & Enterprise

Op-ed: AI and rare diseases — leveling the playing field for patients in rural areas

For many rare disease patients, access to expert care remains out of reach. Families often endure years of misdiagnoses and medical visits before finally receiving an accurate diagnosis. This is often ...